**AUTISM / ASPERGERS SUPPORT GROUP**

A safe place for all members with friends or family with ASD

Come and have a cuppa, share your joys, and vent your problems with other people who understand.

I don't know what normal is anymore
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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Good news for all then?:-)


Bella that is so invasive of the aide?


Little miss had a bad start to her school year, she was sick but we thought maybe nerves. After lunch the children had a 15 min rest and she fell asleep! for the rest of the day.


Teacher says the morning went well and suggested 1/2 days for a bit, so 1/2 day Friday and all next week.


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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Azure, sorry lil miss was feeling a bit yuck.  Maybe a bit  overwhelmed by the sound of it? 1/2 days sound like a great idea until she gets used to a new routine.



Re my aide, it is a challenge.  She told me not to send last years books back because they wouldn't do.  I was thinking what on earth does she think I am stupid??? Anyway I politely told her to calm down.  She was insisting she has to come around I told her it wasn't a good idea and that I am more than capable of packing the girls bag.  Not sure that sunk in thou.  If it becomes a problem I'll speak to the school again.



I think maybe she is a perfectionist but in being like that it causes my girls stress.

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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Az, sorry to hear little miss was having an off day on her first day there.  I hope she picks up and that school does not make her ill... tummy upset was an issue for years with us... now he gets headaches.



Bella, you wrote about that aide last year... did she not learn? I hope she was not the cause of your daughters stress!!



Besides..it is not the aide's job to pack the bags.. in reality it is not even your job.. it is our job to teach our kids to pack thier bags... and I am sure you are already onto that... :-x



Message 2053 of 2,234
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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Oh I agree Cat.  The thing is though because of the attitude from the aide (I'm sure its just how she is unintentional) it causes immense stress for the girls.  For example aide is stressing over how many pens/textas the girls have because it takes them too long to get pencils out.  I think its over the top, who the heck cares seriously its a normal pencil case.



I find her more frustating than ever after this last phone call, its kind of patronising but at the same time I have to put my feelings aside and work with her in the best interests of the girls as there is no other option.



Oh and yes same lady!

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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

sheepy12
Community Member

Bella, I'm so pleased to read that things are all coming together for your girls (and yourself and OH of course).


 


Things are all good here.


 

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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

New to the Board.


My 13 year old son was diagnosed with Aspergers in preschool and for all the grades 1 - 7 we struggled with school but had very understanding and helpful teachers that made it a whole lot easier. So in 2011 we started high school and after 1 term had to remove him because of constant meltdowns and anxiety. Went to see our 6trh Mental Healt expert who rreally had no idea at all. In the end he was put medication which took a year but finally he is able to cope with the outside world again. So we decided to home school and so all is well except we still have people who don't get it, we asked for very basic maths as master 13 is not capable of anything harder we ended up with normal grade 8 work as he is repeating the grade. Whem do these people start to listen to the parent we live with these children day in and day out and sometimes l feel l am talking to my self.  Sorry for the vent but aometimes it keeps me sane.

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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Madcap, I know your pain.


 


My son is 13 and was diagnosed at age 7, in grade 1.


 


I struggled through primary school with him, even though I was very lucky and found I was at a very, very supportive primary school. We got no funding at all for him, even though he really needed help.


 


I thought long and hard abou High School and ended up taking him to one in a suburb 40 minutes drive away (in peak hour anyway).  I am glad I did.


 


He got severe anxiety and shut down totally by July last year (in yr 7) With wonderful support from his padiatrician and psychologist, we worked with the school and he now gets funding for the first time ever.  The school we are at is approachable (not perfect) and willing to listen to me.


 


From what I have learnt bout the local schools, they are not.  I have regular contact with kids from a lot of schools and they  are the ones who told me not to send him to a local one.


 


 


So have a look around, is there another option for you in the way of schools?


 


Hope it gets better for you.♥

______________________________________

You don't have to be crazy to be here, but it helps.
Message 2057 of 2,234
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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Hi Madcap,


I also know your pain.  I had to remove DD from the local High School due to meltdowns and anxiety after term one.  It was very difficult for her to cope with all the changes and routine of High school.



We now access DE although that too was a challenge.  We are hoping that this year will be a better year for her.  She is now seeing a psych who is far more understanding in regard to AS. We figure we are just on a different journey to most.



I also have to other daughters with Fragile X Syndrome (intellectual disability) and autism.  They are going to High School two days a week.  The school has been flexible although the aide challenges our sanity regularly lol!



It's not easy advocating for our kids that's for sure but remember you are the expert! From what you have written its seems like you are a very dedicated and committed parent doing an amazing job!



Anyway it is nice to meet you 🙂

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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Bella :-x



http://www.abc.net.au/local/sites/conversations/



Tony Attwood on ABC radio today, on Aspergers.

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Re: **AUTISM / ASPERGERS SUPPORT GROUP**

Thanks Az.. listening now..

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