FIBROMYALGIA chat thread

[channys_mum]

For sufferers to be able to support each other. 

A place to chat/moan/whinge and know that someone understands

www.webmd.com/fibromyalgia/guide/what-is-fibromyalgia

[channys_mum]

When I was self employed I couldn't either, however I am retired now and am enjoying the luxury.

There you go kilroy, something to look for ward to

[freddie*rooster]

The reason I ask this Kilroy, i'm wondering if there could be a connection with a product you use in your business.

[siggie-reported-by-alarmists]

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@kilroy_is_here wrote:
I'm self employed if I'm not productive I loose everything I am so frustrated with it all the treatment is just as bad as thealiament

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Maybe it might be worth discussing changing medications with your doctor.

[channys_mum]

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@kilroy_is_here wrote:
I'm self employed if I'm not productive I loose everything I am so frustrated with it all the treatment is just as bad as the aliament

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Kilroy could you manage without meds, and just take painkillers to take the edge off like I sometimes do.

I don't have a choice, however I mostly function fine.  Today was a bit iffy. I still did the basic, cook do dishes, feed animals and make coffee for friends. Oh and occupied myself on here.

[kilroy_is_here]

My medical history is long and quite varied it starts from before I was even born , so not work related.
Pain killers were not enough as pain was also getting in the way of work

[kilroy_is_here]

Retirement is a long way off channy my youngest is only 7 , giving up work is definitely not an option as wife doesn't work and has had her health issues last year .
Im not looking for sympathy just need to vent as I am one of those people that everybody comes to for help but when I need it there is a mad dash for the door

[channys_mum]

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@kilroy_is_here wrote:
Retirement is a long way off channy my youngest is only 7 , giving up work is definitely not an option as wife doesn't work and has had her health issues last year .
Im not looking for sympathy just need to vent as I am one of those people that everybody comes to for help but when I need it there is a mad dash for the door

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kilroy I don't for one minute think you are looking for sympathy.

It does help to be able to talk about your issues and have people who really understand where you are at.

[Anonymous]

Sorry to hear you've receive a Fibromyalgia diagnosis channys_mum.

It's a nasty, unforgiving condition that may take you and your physician a long time to manage it, both emotionally and medically.

I just want to wish you all the very best in what's going to be a long journey of discovery about your body and your ability. 

Someone (sin I think) already said, listen to your body. It's true! Time has come to learn more about what your body needs than you ever thought imaginable. No other person on earth can tell you how you feel better than you can or when your body is asking for assistance, screaming for help, craving for something or perfectly comfortable!

Learn how to tune in and listen.

A great site worth a visit: Chronic Pain Australia

kilcoy,

I've been on Lyrica for 3 years with doses up to 600mg per day. It can react differently to individuals so it's impossible to give you an answer how you'll go on it. Definitely 25mg at a time and very slowly under strict supervision and increase or decrease gradually. Please take care as these medications can definitely be very dangerous if not monitored correctly.

All the best

Di  ♥

[Anonymous]

I'm not a Fibromyalgia sufferer.

I just wanted to give my support to you and answer kilroy's question about Lyrica. xo 

[sineaterdoodah]

kilroy,i hope i didnt offend you,i didn't mean it that way. i do understand having to work to take care of your wife and kids. 

and i don't think anyone on this thread is just out for sympathy,you need to vent,and that's a great thing,to have people you can vent to that do understand! and can maybe help too,that's a wonderful thing! 

i have tunnel vision,it makes stairs very difficult,i've fallen more times than i can count. i have almost no peripheral vision,there are people who think it's funny to scare me half to death by touching me,or jumping out at me,when i can't see them coming. 

when they look at me,they can't see anything wrong with my eyes,and i function well,mostly,so they just don't get it when i ask them to please walk behind me,or in front of me,on stairs,in case i should fall. and then laugh when i DO fall,or accuse me of being drunk or on drugs. it isn't fun. 

i figure that kind of reaction isn't nearly as bad as what you and the other fibro sufferers deal with,when it comes to people not understanding. i can explain it by handing them a pair of opera glasses,and telling them that what they see through them is ALL i can see.