FIBROMYALGIA chat thread

[channys_mum]

For sufferers to be able to support each other. 

A place to chat/moan/whinge and know that someone understands

www.webmd.com/fibromyalgia/guide/what-is-fibromyalgia

[channys_mum]

Hi dixo.

Thank you for yout thoughts

I have had fibro for a long time. All I can do at the moment is grin and bear it

Maybe that will change if my other condition eases off.

[kilroy_is_here]

Sine don't sweat it I have been told that you couldn't offend me with a semi trailer.
I had a good day today they double my dose last night for the first time in years I almost felt human , didn't last tho , feeling pretty **bleep**py now , but after 30 years of pain 24 /7 I have no expectations , but today has ignited hope and I didn't have the urge to consult a bus time table so fingers crossed

[sineaterdoodah]

thank you! 🙂

that's definitely good news!!

[channys_mum]

Light bulb moment I think.

Bus timetable. Are you finding it hard to drive the car now kilroy.

[kilroy_is_here]

Lol no channie , no the bus time table is when I feel so low I could jump in front of a bus, not that I truly would and buses never run on time any way.
Before everybody either jumps up and down or go's into melt down I have been involved in quite a few suicides so I know the devastation they course I would not put my family through it it's just my way of dealing with the ups and downs

[channys_mum]

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@kilroy_is_here wrote:
Lol no channie , no the bus time table is when I feel so low I could jump in front of a bus, not that I truly would and buses never run on time any way.
Before everybody either jumps up and down or go's into melt down I have been involved in quite a few suicides so I know the devastation they course I would not put my family through it it's just my way of dealing with the ups and downs

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Lol should have known, I usually say omg where's the London bus when you need it. 

[lyndal1838]

I know very little Fibromyalgia but I do know a little about pain relief in general and saving money without sacrificing effective pain relief.

Anyone who is using plain Panadol 500mg at around $10 for 100 tablets can save a lot by changing to Panamax 500mg at $1.89 for 100 tablets.  Panamax is the pain medication prescribed for Health Card recipients but it is cheaper to just buy it over the counter.

My prices are based on Chemist Warehouse prices.

[lakeedge]

I was diagnosed with poly myalgia rheumatica, which means all muscle pain. It ruined my life for 2.5 years, it has all the symptoms of fibro myalgia and possibley I had that too. Chronic fatigue, back and neck pain then all body pain. I could manage the pain but the chronic fatigue meant I only lasted till lunch time every day then I would have to crawl up stairs on my hands and knees and go to bed, It stole all that time off me.

I was on Prednisone (steroids) but after 2.5  years it was burnt out (my docs words). 

5 years later I have, just this week,  been diagnosed with osteo arthritis in the hands and I didn't know what hit me, it was agony and I was totally incapacitated, much worse than the poly myalgia pain wise.

I am back on steroids and I will be seeing a arthritis specialist in  4 weeks time.

When I was suffering the symptoms of poly myalgia my doctor thought it was a virus for over 6 months  but with the help of friends and Dr Google I went back and told him and he immediately did the blood tests for the inflammation factor and it confirmed it. Nobody was talking about these two diseases then so I was lucky in that I did the research.

I am now struck down with the most awful pain and restriction of movement in my hands. one day I was fine, next day I had it, there is no cure. I hope the specialist can do something.

I was surprised to read all the posters who have some form or another pf poly or fibro myalgia or worse. My thoughts are with you all.

Have a wonderful Sunday 

[channys_mum]

I have been on prednisone for almost four years now. I was on 50ml per day, now down to 5ml per day. This is for autoimmune chronic active hepatits. Because I am allergic to azathioprine I could only be treated with long term preds. This has caused osteo arthrtiis and diabetes and of course weight gain. I gained 30k and have now taken off 15k of it. I don't seem to be able to budge anymore now. I haven't given up hope though lol

Lunch time seems to be the limit. I try to get everything done by then. I can't crawl off to bed as I look after my intellectually disabled brother, however if I do a little, sit a little I can manage the day.

micasheen I hope the specialist can do something for you, even if it is only pain killers. If your liver is fine you should be ok there.

Anyway I have had a bug for the past two days and not done any domestics. My house looks like a teenagers bedroom, so I had better go remedy that.

Good luck again micasheen

[kilroy_is_here]

Anybody seen my bus time table,:(