For sufferers to be able to support each other.
A place to chat/moan/whinge and know that someone understands
www.webmd.com/fibromyalgia/guide/what-is-fibromyalgia
@kilroy_is_here wrote:
Grumpy , but better than Monday and Tuesday .
Been think about you and I have to ask do you get any respite help coz you should , I don't know how you find the strength to get up every morning
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I am glad you are improving kilroy, just keep positive. I know that can be difficult.
I get three hours every Tuesday. Someone comes in, cleans Graham's bathroom and loo, strips his bed and remakes it, vacs his room and then takes him uptown, so that I can have some home alone time.
I can get nine weeks per year respite in a facility. They only accept 2 week stints, and the cost is about $50 per day.
I had one of those this year. I took three weeks.
Six months before I took him away for 11 days. We went train riding to Cairns and back. If you look in the theme red photo thread there is a pic of Graham standing beside an old tram.
Some mornings getting up is a struggle, however I have a silver guinea fowl who wanders around and knocks on my bedroom window (I kid ye not) and if that fails my little silkie rooster wanders around and crows, then Graham wanders down to my door and in a very loud voice says good morning to my deaf blind 16 1/2 year old dog who sleeps just out side my door in the lounge room.
Now I ask ya kilroy do I stand a chance.
kilroy most mornings are hard to kick start, and many evenings it's hard to wind down. Some days I get a bit grumpy because of sleep deprivation, then I get too exhausted to be disturbed by pain and have a really good nights sleep
Can't remember the last time I got a restful night sleep , off brain scan tomorrow so that should be fun
@kilroy_is_here wrote:
Can't remember the last time I got a restful night sleep , off brain scan tomorrow so that should be fun
I don't have brain scans. Nothing to find
So, how did yours go today.
Same here for specialists, but my gp gets a copy of my results and rings me if it is bad. He sends me a letter if it is not so bad.
I usually know within two days.
Not so much now, but when my condition (not fibro) was new and really bad, he would get me to come in and he would ring the specialist while I was there and we would all discuss the next step. I relapsed about a month ago so I am on fortnightly bloods. I was on weekly bloods for a long time. My gp would ring me, sometimes at night latish after he had read the report.
Maybe I am just lucky to have a really good gp.
