Re: Good Morning

Anonymous · ‎23-07-2015

Hello everyone xx

Long time no post ...hope everyone is going ok .

Not much has changed for us ...things are still pretty tough some days .

Finally we are getting some answers with miss m ..taken 20 months ..but hey .

She has been diagnosed with severe quadriplegic cerebal palsy ,with severe dystonia though her whole body including her mouth and tongue .
She is in a lot of pain ..which we have said all along ,and it's been put down to irritability .
So blooming frustrating ..
Thank god for the royal children's hospital ..we will have another teli link in a few weeks .
There are heaps of meds we can try .and Botox ..also a pump further down the track .
We just want her comfortable .

Miss a is still very fragile ..and mr d is into everything lol.

And it's been cold ..

Anonymous · ‎23-07-2015

So we still can post pics from iPad then ..
Mmm.
My lappy died ..so can't post pics at all ..sooks !

lionrose.7 · ‎23-07-2015

HI Annie so glad you are finally getting help with the little girl.

So awful to think she is in pain XXXXX

Cold here too but not as cold as Tassie, down to 3 here to night, coldest winter ever, Got the electric blankie on waiting for me.

tasfleur · ‎23-07-2015

*Flannie* .........

It's so good to see you here again.

You are putting so much love and nurturing into the little one, truly, you are an angel on earth xxx

j*oono · ‎24-07-2015

Hi Annie. It's so good to see you again. I think about how you are going with the huge pile of heartbreak fed to you last year.

Lots of love to your family and thank goodness they have you to look after them.

Joono

mtnlane · ‎24-07-2015

Hi Annie

I suspect you might be surprised and hopefully touched to know how many of us have thought about you and your family so very often.

It is good to see you post again - hopefully there will be some laughter and support for you here from time to time to brighten up those very tough days.

.

flashie* · ‎24-07-2015

Good to see you post Annie.

I second my felow Stringers posts.

And...................here is a lolcat..................

serendipityricho · ‎24-07-2015

Annie♥-just noticed your post on a readaround.

Geez-life has dealt you some lousey hands of cards in the past couple of years.

I question why its all happened to such a nice person.

Great to see other posts in support of you----even a lolcat lol

Be strong and take care..............kindest regards..........................Richo.

Anonymous · ‎24-07-2015

Hi rosie , tas , joono ,laney ,flashie and Richo
All you guys have been a great support to me and I really do appreciate it .

Had another kick in the guts a few weeks ago ,niece lost her baby ,thought she was past the danger zone at 13 weeks ..not fair .she is doing ok tho ...after losing her mum we were all so thrilled for them and bro was over the moon .

God my Dil deserves a medal ,dunno how she does what she does ,and she is still grieving ..miss m is 24 /7 care and will be for the rest of her life ...I have her one full day and night a week, and I am shattered afterwards ...love it tho she is so loving and snuggly .she chose a special mum that's for sure .

Will try and get some pics up on other computer later .

Anonymous · ‎25-07-2015