Hello everyone xx

Long time no post ...hope everyone is going ok .

Not much has changed for us ...things are still pretty tough some days .

Finally we are getting some answers with miss m ..taken 20 months ..but hey .

She has been diagnosed with severe quadriplegic cerebal palsy ,with severe dystonia though her whole body including her mouth and tongue .
She is in a lot of pain ..which we have said all along ,and it's been put down to irritability .
So blooming frustrating ..
Thank god for the royal children's hospital ..we will have another teli link in a few weeks .
There are heaps of meds we can try .and Botox ..also a pump further down the track .
We just want her comfortable .

Miss a is still very fragile ..and mr d is into everything lol.

And it's been cold ..