on 02-05-2013 09:13 AM
And not just because it would make us all feel warm and fuzzy. There are good, hard-headed economic arguments for increasing our disability spend which is currently below many OECD countries.
PAUL Prendergast is the father of a 26-year-old daughter who - he states proudly - enjoys an "active social life, attendance of a drama group and a dance group and 10-pin bowling".
But Mr Prendergast's daughter also has Down syndrome and, like many ageing parents of a disabled child, he worries about his daughter's future. He fears she will end up in an aged care facility when he and his wife die.
"This thought fills us with dread as our daughter's quality of life would evaporate should she be housed far from her friends and activities," he wrote in a submission to the Productivity Commission's 2010 inquiry into disability care.
Trevor and Trish Browning's daughter died at just 13. In their submission, they describe the "constant battle to get assistance" for their daughter who suffered Rhett syndrome.
"We had to fight for every aid and facility" they wrote. "We saw so many people just give up in despair as they did not have the stamina or time to take on the myriad Government departments and agencies that purport to provide services."
These are just two of the heartbreaking stories contained in the more than 1000 public submissions to the Commission's inquiry. They detail the "emotional and financial roller coaster", the "humiliation and isolation" and "unrelenting and huge" stresses of living with a disability in this country.
Truth is, disability could happen to any one of us, at any time.
All of us face the very real possibility of having a child with a disability or suffering from a catastrophic injury ourselves.
So all Australians have an interest in providing better services and care for the sick and the disabled.
And not just because it would make us all feel warm and fuzzy. There are good, hard-headed economic arguments for increasing our disability spend which is currently below many OECD countries.
Australia has the seventh lowest employment rate for people with disabilities in the OECD.
Better support for disabled people wanting to enter the workforce could lift gross domestic product by a full percentage point by 2050, or $32 billion in today's prices, according to the Productivity Commission. Not only would these new workers pay income tax, they would require less income support.
There would be other benefits, too, from improving the wellbeing of people with disabilities and their carers, efficiency gains through better provision of services and reduced strain on hospital budgets from caring for disabled people.
"The bottom line is that benefits of the NDIS would significantly exceed the additional costs of the scheme," the Commission found.
Which leaves us with the thorny question of just who is going to pay?
In outlining the extra $6.5 billion a year needed to bring disability care funding up to acceptable levels, the Productivity Commission did not stipulate how this should be funded. But it did stress the funding would need to be secure and stable into the future.
Raising the GST was one option canvassed. A Medicare-style levy was the other and it appears the Government is readying to do just that in the May Budget.
The Government currently raises $9.6 billion a year through the Medicare levy which is a 1.5 per cent tax on all taxpayers earning more than around $24,000. Boosting this levy by 0.5 percentage points would raise an extra $3.2 billion a year. A person earning $50,000 would pay about $250 more a year.
Alternatively, the Government could impose a separate 1 per cent "disability care and support premium" which would raise around $6.4 billion a year - enough to fund the NDIS in its entirety.
There are several advantages to such a levy, particularly if badged as an insurance premium. According to the Commission: "There is some value in using the word `premium' instead of tax or levy because it would make it clear that every taxpayer is getting a service - namely an insurance product, that provides him or her with disability supports if they are required."
But let's not sugar coat it.
Any new levy would essentially be an increase to all personal income tax rates.
Such a hike would go some way to taking back some of the unsustainable tax cuts handed out by the Howard and Rudd governments which were funded by a once-in-a-century mining boom which has just run out of puff.
The downside of a levy is that it would add more complexity to the already complex tax system. But given the unpopularity of raising personal income tax rates, such chicanery may be necessary.
There is also a risk that a disabilities levy would make people less inclined to make separate charitable donations to disability care. But the certainty of funding would be worth it.
If set too low, the levy could also risk giving the false impression that it fully funds the cost of the scheme. Indeed, the Medicare levy doesn't come close to funding all Medicare linked services.
The bottom line is that the money for disability care must come from somewhere. And that somewhere is us.
The Government must make every effort to cut wasteful spending and remove unfair tax concessions. But it's clear that taxes must rise too to meet the Budget challenge.
So how about it? Are you willing to chip in a little extra to support those suffering the most in our community, like the Prendergasts and the Brownings?
Are you willing to pay a little insurance for the fact that it could be you, or someone you love, one day? I am.
on 14-05-2013 11:27 AM
there has been some great new re Disability Care 🙂
Mrs Wormwood, you asked what I needed.
I will just say what I'd like ..
I'd like to congratulate you on helping the person/child and family you help ..this individual and their family care for and about their family member on a daily basis .They are doing what you do when you go and help them..they are caring.. ...though unlike you they do it always .
The biggest thing I'd like to see is for it to be as OK for them (and others) to come and post about their family and their situation as it is for you (a third party) to do so about them and what you do for them.
on 14-05-2013 11:31 AM
Lol wow! The old one tried reallllll hard in here to get rid of me lmao
on 14-05-2013 04:48 PM
Lol wow! The old one tried reallllll hard in here to get rid of me lmao
Age is the price we pay for the gaining of wisdom - I guess you are still quite young.
on 14-05-2013 06:02 PM
Lol wow! The old one tried reallllll hard in here to get rid of me lmao
Iza, I'm not sure I quite understand where you are going with that post.
At NO time was I ever inferring or intimating that you had no right to discuss your own situation.
I asked you what is was that you needed.........wondering if the it was respite, support, who knows.
You never answered. I was going to suggest some sort networking for you that the family here has.
And no! I don't live and breathe caring for a disabled family member 24/7 like a lot of people do or have done. That certainly doesn't mean that I don't empathise and want things made easier for them than they do themselves.
on 15-05-2013 07:04 AM
🙂 Hi Mrs Wormwood, The post you quoted is LT's not mine.
At NO time was I ever inferring or intimating that you had no right to discuss your own situation.
No you didn't.I'm sorry I wasn't meaning to suggest that you did.If you followed the thread you may understand why I didn't/don't answer your question about what we need ?
on 15-05-2013 07:51 AM
Oops! Sorry LT! Meant to quote #230......don't know how that happened as I was the reading the post as I was responding to it. Cheers, Mrs W
on 15-05-2013 08:07 AM
Iza, from what you have told us about your son did you know there is a very big chance he will not get any assistance?
There is a big question that the government has not answered and that is how disabled do you need to be to get assistance...
Chances are my son won't qualify...
I have looked at the criteria so far and from what I have read you must be severely disabled in the eyes of the government....
If it does turn out that your son does not qualify will you be happy?
(I don't mean to be personal either... I have a son that struggles and so do you... I am just curious about what you think should be considered disabled..)
on 15-05-2013 08:57 AM
If it does turn out that your son does not qualify will you be happy?
yes I would. I don't see it so much as something that will help us (either my son and our family or my sister) now but something that will help others in the future.
If you search (it's on a Government site)
My Choice, My Control, My Future: DisabilityCare Australia (NDIS) Public Conference
you will see it's a work in progress
http://www.ncoss.org.au/resources/DNF/eupdates/120809-NDIS-Eligibility-Assessment_BIA.pdf
the above is a background paper on the NDIS/NIIS by Brain Injury Australia.
on 16-05-2013 10:08 AM
I agree Bella, we haven't yet got the shift from an institionalised care/living focus to a Community care/living focus right.
I think some people may have preferred the 'sight unseen' mentally of the past.
I have worked in institutions for both mentally ill and intellectually handicapped (or whatever the current PC term is) and was involved in the Richmond Report in Sydney in the 80s to move people to the community and actually think for many people institutional care is a good option. Scattered houses in the community make families feel good, but how many of these people become isolated from their peers with neighbours who don't want them there and how many carers working alone do so at risk of physical assault? While I look back in a vaguely idealistic sense, I can remember a time when the profoundly retarded (as was the correct term of the era) were well cared for by staff who became fond of them, the moderately and mildly retarded had daytime occupations (gardening, light production line work), outings, parties, weekly discos and 3 monthly balls and were able to socialise with their peers without feeling different or lesser. Maybe in Dickens times institutions were dark and damp and violent but in the 70s and 80s and until a couple of years ago in the institution I currently work in, in Queensland, they were positive places with everything geared towards the needs of those who are needy, not trying to make them the same as those without disabilities who want to pretend the disabilities don't exist.
Re the NDIS I haven't seen anything yet that makes me think it will improve the system for the masses. I am interested that nearly news item I have seen has featured a cheerful person with Down Syndrome to promote optimism and a better future but very few people with physically abhorrent appearance or those who are damaged mentally through drug abuse with resulting poor impulse control and increased aggressive behaviour.
on 16-05-2013 11:26 AM
Hi Elizabeth's Mum ,
I've started and stopped and deleted a reply to you several times..
I understand what you are saying.I worked as a prospective psych nurse in the late 1980's.I saw a lot;good and bad as well need for and benefit of earlier 'preventative health measures' and community support systems.