what is Dravet Syndrome ??

Campaigners for the use of medicinal cannabis are outraged over a one year jail sentence given to a prominent north coast grower of the herb when he appeared in Kempsey Court yesterday.


 


Supporters of Tony Bower, 56, who is being held in custody despite lodging an appeal against the sentence, which carries a nine month non-parole period, say they will continue his work dispensing medicinal cannabis to cancer sufferers and others with terminal or debilitating illnesses.


 


Mr Bower was charged after a police raid on his Mullaway property last year, which netted around 200 hemp plants that he had earmarked for production of medical tincture to distribute, free, to sufferers.


 


His partner Julie told Echonetdaily that she and others attending the court in solidarity were shocked he was not given bail after magistrate Wayne Evans said Mr Bower was not remorseful and would continue to give away the tincture.


 


 


 


http://echonetdaily.echo.net.au/medicine-man-jailed/


 


From the comments underneath the article re the Today Tonight story


The child featured above is my daughter.

Also in that video is young Molly who sadly lost her battle with dravet syndrome last yr. in the last 12months too many dravet children have died.



We have no other options – they don’t work, good seizure control for a child with dravet is still uncontrolled to everyone else.



These kids deserve a chance. My Tara deserves to live.



Today I am sad to be an Australian. Whilst Tony sits in a jail cell wondering what he is going to do, I sit here wondering if my 7 year old daughter will now live to see Christmas.



In December last year we were told 2013 would most likely be her last year on earth. We didn’t give up quite so easily. We were not willing to say goodbye yet.



Tara has such a rare disorder that officially it doesn’t have a name, the closest known disorder is Dravet Syndrome (this is similar but Tara is progressing much quicker) Between October 2012 and January 2013 Tara was resuscitated 3 times, twice by me, her mum.


 


Most likely she would not survive the next time. By this time Tara was taking 5 different medications (18 tablets a day), she was dying. That was until we found Tony Bower.


 


Tony is NOT a criminal to me; he is a crusader, my hero. Without a doubt he has saved my child’s life. But now with Tony sitting in Jail we have no further supply of medical cannabis coming in, this means without a doubt Tara will die. Medical cannabis is all that is keeping her alive.



So what was it doing? In January Tara was having 10major seizures a day, and half hourly absence seizures and 5 nocturnal seizures.



For the record YES that is over 23000 seizures a year!!!! No drug was working, she always had seizures day in day out from when she was just six weeks old.



We were told her IQ was now too low to score dropping from 82 four years earlier and her brain had begun to shut down. We were on the home stretch she simply could not continue like this.


 


Within a day of starting Medical cannabis Tara’s seizures had halved. By 10 days she was seizure free. Now four months on she has only had one 90 second seizure since February.


 


She has started to learn again, she can write her name, she can memorise a basic text. She is no longer using her walking frame and has begun toilet training.



Without Tony and crusaders like him we will lose too many children way too soon.


 


By denying Tara her medical cannabis the government has effectively signed her death certificate.


 


Please have legislation changed before it is too late, children and adults around this country will die without Tony Bowers Medical Cannabis, he MUST be released as I fear if he isn’t there is simply no option left for my child.


 


I plea to you please do not allow my child or others like her to die, simply because our laws here have not caught up with the rest of the world.


 


Please shout this message through social media, talk with friends ring/email your MP. Until Tony is not only freed but is free to continue his work!

atheism is a non prophet organization
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what is Dravet Syndrome ??

well, I am pretty much disgusted with alcohol related illness and deaths..... I don't think that I am against it but I am against the over consumption... 


 


I have seen the damage alcohol does to the body over the last 12 months in a way I never even realised.. I am really shocked... i had no idea how bad it can be... 


 


but this is about the benefit of cannabis on people suffering severe illness... a bit different. 

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what is Dravet Syndrome ??

http://edition.cnn.com/2012/12/10/health/medical-marijuana-child


 


Oakland, California (CNN) -- Six-year-old Jayden David violently shakes on the ground, his blue eyes vacant and then filled with searing pain.


 


The video shows an unvarnished look at a seizure, something Jayden once experienced routinely.


 


Not anymore, says his father, thanks to medical marijuana.


 


Before he started taking a liquid, nonpsychoactive form of marijuana, Jayden couldn't walk, eat solid food or take a bath.


 


He has Dravet's syndrome, a rare and catastrophic form of childhood epilepsy.


 


It has triggered seizures so frequent that 44 times he has been rushed to the hospital in an ambulance, his distraught father by his side.


 


Jayden's doctors prescribed 22 anti-seizure pills a day, which controlled the seizures but left him immobilized due to the side effects.


 


"He's in pain and suffering and crying," said Jayden's father, Jason David. "You can't help him no matter what. What are you supposed to do? You have to do whatever it takes to save their life."


 


 


 


 


 


 


 


 

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what is Dravet Syndrome ??

Before he started taking a liquid, nonpsychoactive form of marijuana, Jayden couldn't walk, eat solid food or take a bath.

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what is Dravet Syndrome ??

http://iambillsmith.com/Charlotte.html


 


I found people dedicated to growing high CBD  strains of cannabis.


 


The CBD, or cannabidiol, is a property of the plant helpful with seizure control.


 


The THC in the plant, while having its own medical properties, is also known to give the psychoactive effect, the 'high'.


 


Hearing of some success with Dravet Syndrome and CBD, I searched out sources of high CBD:THC ratio plants, and found some as high as 30:1. sic (ie 30 CBD: 1 THC)


 


After getting the green light from our team of neurologists and pediatricians, we started Charlotte at low, non-psychoactive doses and charted her progress.


 


The first week she went seven days seizure-free, down from the 300 grand mals she had the previous week.


 


Three months into our journey and she was at a solid 90% seizure reduction.


 


She is pharmaceutical-free.

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what is Dravet Syndrome ??


Before he started taking a liquid, nonpsychoactive form of marijuana, Jayden couldn't walk, eat solid food or take a bath.



 


I was talking to a woman at QandA that had a question to ask about hemp tincture and other hemp products. Alas she didn't get to ask her question either  😄


 


I was surprised at the uses she was suggesting for it. I'd not heard of the tincture or oil until that night.

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what is Dravet Syndrome ??

Her question was about why it is still illegal in Australia to produce hemp products that have known health benefits.

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what is Dravet Syndrome ??


Her question was about why it is still illegal in Australia to produce hemp products that have known health benefits.



 


politics you can read about it on the hemp foods australia website


 


legal link here http://www.hempfoods.com.au/legislation/

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