NDIS frustration for mum

[davidc4430]

NDIS frustration for mum who asks Minister to attend meeting after child denied wheelchair

https://www.abc.net.au/news/2019-08-16/mum-asks-ndis-minister-to-meeting-after-child-denied-wheelcha...

whats the bet suddenly this lady gets all the stuff she needs now its a media story?

[imastawka]

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@martinw-48 wrote:
I'm sorry to hear that stawka.
It's a pity that the nuns were so nasty

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And they were.

My mum taught at the same school.  When I told her about the whippings I got from the nuns using a cane feather duster, she told me I must've deserved it.

But I think we've strayed from the thread title.

[martinw-48]

Yes, sorry.
The NDIS is an unmitigated disaster.
It needs people in charge that are focused on the disabled

[janeababe]

When the NDIS rolled out in 2016, I knew then (and most likely, millions of other like-minded health care workers in the industry) that the NDIS was a scam, and a ruse for the govt to ‘smokescreen’ the deliberate mis-use of funds. 

I personally know of families who lost hundreds of thousands of dollars from their disability package, once it merged from the old system to the NDIS! That money is now ‘controlled’ by assesssors and govt bodies who have NFI about the needs of a person with a (1) physical disability .... and .... (2) an invisible disability!! 

QLD NDIS does seem to be more poorly managed than other states, I’ve noticed! 

Wheelchairs are not cheap. A child with a physical disability can’t just use any old basic stock-standard wheelchair, and if you can’t understand why, then I would suggest you go and bloody educate yourself! 

A individualised wheelchair can cost from $12,000  - $40,000! and a growing child may need 2 or 3 specially made for them in their life time. 

I feel very very sorry for the mother in this article, and I also know that there are many many MANY more parents just like her, struggling and fighting for help! 

This is a mother who just wants the best for her children. Her children are disabled, and they are lucky to have such a passionate and caring mother who DOES worry about their well-being, and their social growth in community..... which is EVERY PERSONS RIGHT to access!!!!   Even schooling and education! This is no different from the wants and desires of able-bodied children, is it not? 

The NDIS does provide payments to schools and RTO’s to provide specialist educators to learners with high needs, such as this child.... but if the NDIS isn’t coughing up the $$$ for a wheelchair, I bet there’s Buckley’s of them paying for a highly trained specialist educator at the school for them too! Mainstream teachers are not equipped or trained to handle this level of disability and displayed emotional uncertainty. 

I’m sorry that teachers and children were affected by this..... but I’m MORE SORRY for the child in this article! After all, she deals with this turmoil every single day 😪. She can’t just stand up and walk away, when it all gets too hard! And in case you haven’t noticed, I’m fired up! The NDIS and it’s utter incompetence boils my blood!! 😡

I hope the mother in this article gets gets everything she needs and requires that allows her children ( and herself) to have the best life they possibly can under the circumstances. 

Be be grateful for what you have and can do.....  and show compassion for those who were not so fortunate ❤️

xxj 

[springyzone]

I'm not sure if this is exactly the same thing, but my sis in law has a disabled husband who was living at home. He was assessed as high care and with this, came an allowance. It wasn't an allowance that went into their bank account, it was a department allowance and if they wanted something for her husband, they had to save up the allowance for it. I forget exactly what amount the allowance was-maybe $30 a day? Forget exactly.

But the main bugbear my sis in law had with it was that she could not use the allowance to actually go out and buy something like a wheelchair or scooter. She had to go through a person with the dept and apply for one and only certain oens were approved and the person with the dept would order one. Often the price was about 5 times dearer than what looked to be similar ones on the open market.

I can understand why this system is in place. It is to make sure money is used where it is meant to be used and for quality products. But at the same time, I wouldn't be surprised if the prices are being padded by some suppliers. For instance, the money could be used towards house repairs (her husband was always falling through walls etc) but only for an approved plasterer etc and their quotes were always sky high.

Recently, the man went into a high care facility and what surprised me is all the funding that my sister in law had been saving up for a special wheelchair disappeared the day he left home. It is an allowance only accessible for the person while they are being cared for at home. My sister in law said though that she still has to buy the wheelchair. The funds were there, my sis in law wishes she could have known what was going to happen as she would have ordered it a couple of months before he went into care. As it is, she is now on a single pension so saving is hard.

I'm not sure how all this translates when it comes to children, system may be different. But I am wondering why the mother of the girl in the article was not able to order a wheelchair. Is the girl actually able to walk at all? I can understand it would be easier to move her around in the wheelchair, mind you. But I am wondering if the wheelchair request was denied because she is not physically disabled enough to meet the requirements.

As an aside I believe no, she should not be in the normal school system. mild autism, yes, that's workable. Severe autism though, the normal schools and normal classes just aren't equipped to cope. There are some schools specially for Autistic children, she would be better off there. The main concern, if it is for the child, should be on what she gets out of schooling and in a normal class, I'd say it isn't much. The socialisation would be an added stress for her.

[imastawka]

https://www.msn.com/en-au/news/australia/kerri-anne-kennerley-slams-the-ndis-for-discriminating-agai...

[lyndal1838]

Kerry Anne Kennerley is right, and not only about age discrimination in the NDIS.

When the government increased the age for people to get the age pension they also encouraged people to work longer  but have done nothing to encourage that.

In NSW workers are covered by Workers Compensation which is paid at the same rate for a 70 year old as for a 30 year old doing the same job.

If the 30 year old is injured they have all medical expenses paid for however long it takes for them to recover and get a wage.

If the 70 year old has the same accident they have limited medical expenses paid for 12 months and get no wages.....and at the end of 12 months they are given the push.  Their medical expenses are terminated and they are told to go on the pension.

Springy, I can relate to the quote for the NDIS being higher than ordinary quotes.   It happens frequently in Insurance companies.

Some years ago we had a minor fender bender and a friend who was a smash repairer suggested getting a couple of quotes from the other driver....he thought it may be cheaper than having to pay the excess.   It turned out to be a lot more and our friend was outraged at the profiteering.   To make matters worse when the claim was finally settled with our insurance company it had nearly doubled from the quotes that we had been given.  The insurance company could not have cared less even after we showed them the quotes.

[springyzone]

Yes, age discrimination is everywhere, it's the last bastion I would say, whether that is in something like the NDIS allaowance or employment.

I found a similar thing when my brother had cancer and was unable to move and a whole lot of other things.They told us if his condition stabilised for any length of time, he could not stay in palliative care, but at the same time, he could not go into any kind of home as he was under 60. They would have to apply for special permission.

I would have thought there should be provision for people of all ages. It's not only those who are under 60 who can have high care needs.

As it was, he died soon after that so the question didn't arise for us but I am sure it must for a lot of others.

[bimberiretrosystems]

who was the inventor if the NDIS in australia? Yep Bill Shorten and Gilliard.

I remember Labor saying that if liberal does not support it they are the worst people in the world -bblackmailed them into supporting this socialist construct that is the NDIS.

NDIS was based on a system from the UK which FAILED dismally and needed to be re-booted.

Today i see many many new arrivals from africa and to a lesser extent indians as the work force caring for our most vunerable, unfortunately the great majority, maybe even 99%, i see out in Public are more interested in their phones than engaging with their client and helping them i-  have seen many times their client run off, cause damage etc- i asked the workers who they worked for and  it's private agencies like valmar or able.  Many times i had problems communicating with the workers and their bad english-have no idea how a disabled person can understand them.  Seems like the private sector who looks after these people are more interested in the disabled as "business units" rather than people.

I remember the state governments used to run the majority of disability care in all states, but now it's private operators and everything is privatised - strange thing for the labor government of the day to support and push. Look what happened when prisons were privatised or even the aged sector - less accountability, deaths hidden, financial mismanagement and theft - it's much better to have a system of 50% government 50% private to provide balance.

The NDIS and the privatisation of care of disabled people is a disaster and can only get worse - especially when the CEO's of these companies are raking it in - i saw a guy here in canberra once who was the CEO of a disability company on facebook begging for people to donate money for him to go and be a religious missionary in some poor country to bring the religion to them, but this scammer was on executive wages and could have easily funded himself - with people like this running the show no wonder things are a disaster.

[martinw-48]

Labor legislated it.
The Liberal party was in before it came into fruition.
The Liberal party is responsible for the mess it is.
But the Liberal party lie that it is all Labor's fault covers many of their stuff ups.

[martinw-48]

Without socialist constructs many people wouldn't wake up in the morning.
Socialism makes the world a safer place for the greedy regressives and that's a fact.
Remove all socialism and I'm eating my neighbour