After 30 years I might have an answer to a health issue, the answer is not all that good , but at least it might be an answer
http://www.webmd.com/fibromyalgia/guide/what-is-fibromyalgia
That does sound nasty, Kilroy. I hope they manage to find some relief for you. 
Not yet but working on it the treatment has it's own draw backs .
Btw that is a mini list of symptoms search fibromyalgia symptoms mega list
Btw that is a mini list of symptoms search fibromyalgia symptoms mega list
Keerp a positive attitude and try to not let it limit you too much.
My attitude is that if I don't do it, or I do do it, I am going to hurt, so what the heck just do it.
Sleep deprivation is not exactly fun though, nor is the broken thermostat (hot cold sensitivity)
I also have Auto immune induced chronic active hepastitis (cactussed liver) so I can't take pain killers and other meds, well I hadn't been until a few weeks ago and now I take one panadol osteo in the morning so I can get through the domestics easier lol. It takes the edge off. I am on weekly blood tests to make sure the meds aren't damaging the liver.
If you have had it a long time you would have been on pain management I would assume. Even without diagnosis I assume you have been taking pain relief.
It is far better to know than not to know, because now when the brain fog happens you can just deal with it and not think you are losing it. 
Yeah it is a bit ordinary isn't it. Just don't let it rule you, and don't let it get you mentally down
Also don't assume everything is just the fibromyalgia as you progress through the years. It is too easy to let something worsen because you assume it is just the fibro, and then you get to be up the proverbial creek without paddle.
I know, I know don't be bossy channys_mum
Only really had pain killers spasmodically over the last 3 year symptoms started around 1985 have been shunted from dr to dr most saying there is nothing wrong with you just toughen up, it wasn't till 18 months ago that a pain management specialist fobbed me off saying there was nothing wrong with me go see this physio, who treated me for 18 months as a back injury then decided it wasn't doing anything so sent off to a neurologist and he said that he believes that this what I have
The most frustrating part is the attitude of drs who treat you like a hypochondriac , I have been raced to hospital 3 times with a suspected heart attack , the drs and nurses are great till they find out it's not then you get that look and you go out the door quicker than you came in , no other help just the look and out you go
