**AUTISM / ASPERGERS SUPPORT GROUP**

A safe place for all members with friends or family with ASD

Come and have a cuppa, share your joys, and vent your problems with other people who understand.

I don't know what normal is anymore
Message 1 of 2,234
Latest reply
2,233 REPLIES 2,233

**AUTISM / ASPERGERS SUPPORT GROUP**

That's a bugger... new clients need the help the most sometime because they are usually behind in their progress due to never having received help before.

So what you think is happening is that they have accepted your son into the system but he won't get any funding for what he needs?
Message 2001 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

From what I was told that seems to be the case Catmad.

Also The services he probably needs most , namely those available through a program called Headway (to help with the ABI and other issues)

and also support through Duel Disability Services (DHS) are not available in our regional area.
Message 2002 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

I fully get that rural neglect when it comes to services. We have been pretty lucky here, ever since the Patel saga they have made huge improvements to what services we have. It is amazing what a town can get after a disaster like that.

It might be a matter of waiting for all the paperwork to turn up and then going in and seeing someone in person and work through what is available one step at a time.

It is hard as you wish that all the hard work you have put in to get to the point of diagnosis would pay off with access to help but unfortunately that is not the case.
Message 2003 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

sheepy12
Community Member
is it the services or the funding that is not in regional areas? If the services aren't there, how can funding to access them help?
Message 2004 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

is it the services or the funding that is not in regional areas? If the services aren't there, how can funding to access them help?



Hi SL,
We are within 20km of Regional City with a pop over 100K which is increasing quite rapidly.Which seems to please the Government ...they continue to encourage People are to move to regional Cities/towns.

I was told that with funding we may be able to access (pay) for some workers from other services to work with my son here...but that would need funding,of which they said he has none and as there is currently no allocation of funding for new clients they don't know when or if funding will be available.

This must affect many people.
Message 2005 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**


So I kind of wonder if our son had Aspergers wouldn't he have picked it up by now? Although he only sees us 2 or 3 times a year for about 20 mins each time.

Then someone mentioned that some people are not diagnosed with Asp until they are older - teens to adult so now I am just plain confused.

.

Witches, it is true some people are not diagnosed until they are older, but I think you will find most people are picked up as kids these days. However, it is still a really fraught area with some professionals still not having a clue. I would be getting another opinion if you have any doubts.

An example of how some professionals REALLY can stuff things up - my now 18 yr old was diagnosed with Aspergers when he was 7, by a consulting psychiatrist at CYMHS here in Qld. His diagnosis was confirmed over the years by psychologists (including Tony Attwood) and by developmental paedatricians including experts in ASD. He received various supports through his school life, social skills training etc outside of school.

When he was turning 18 I went to our GP to see who would continue his management as an adult, he referred him to the psychiatric dept of a local public hospital who referred him back to CYMHS as he was still 6 mths off turning 18 at the time (who knew the public system could move so fast!) At CYMHS he had to be reassessed; he saw another psychiatrist, who after 20 mins talking to him turned to me and said - he certainly isn't a classic Aspergers case - I think he is just shy and had anxiety! well you can imagine my fury to be faced with this after 10 yrs of battling for this kid.

At any rate to cut a long story a bit short, he ended up being referred for Neuropsych testing to sort out specific problems - and guess what - the report came back saying his results over a wide battery of testing were totally consistent with a diagnosis of Aspergers Disorder. In other words his dx was confirmed, in fact he is even more obviously ASD now than at 7, as the differences in his problem areas and those areas in his peers has grown, as they finished developing normally and he lagged even further behind. However, to counterbalance this he has learned a lot of coping strategies that he is able to utilise to function well with appropriate supports

I guess my point is that some professionals don't know their elbow from their ankle, and sometimes the neurological differences the kid has don't become fully apparent until they get older.

Anyway - good luck with getting an appropriate and correct diagnosis for your son, and particularly in getting the right supports for him
Message 2006 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

sheepy12
Community Member
so, the services are there, just not government funding? but there is access to the services?

if that's the case - same in the cities - many services there - but not funded by the government.
Message 2007 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

so, the services are there, just not government funding? but there is access to the services?

if that's the case - same in the cities - many services there - but not funded by the government.

I don't think it is as simple as that........it seems to be, from the research I have done recently, that the services might be there, with exorbitant costs associated, for things that may, or may not be, of benefit.
Message 2008 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

sheepy12
Community Member
that's why I'm thinking the funding is limited to specific things - because not everything may be of benefit to the majority of users.
Message 2009 of 2,234
Latest reply

**AUTISM / ASPERGERS SUPPORT GROUP**

That's about it Az.

Sheeps i was meaning that a lot of the services which Disabilty services needs in order to meet their Client/customer Charter may or may not be here ( meaning in the nearest Regional City to us) some necessary services may only be available in Melbourne.

Naturally if The Service or service worker needed to be 'imported' so to speak from the States capital or from better equipped areas...that would be a more of a cost than if it was provided/available locally.

and many of us can't pay for the help our kids may need (for their whole life) in order to become more productive and reach their full potential with as little impact on the rest of the family and community as a whole.

I am caring .Not earning money as I once did.I don't expect anyone to do that for me.

I am not ashamed to admit that I need some help to help my son...if it's there and if i have the money,the ability to get him there I will do it and I will pay it if I can.Sometimes I and many others can't do that for one reason or another...it isn't easy.Attitudes of some people can hurt further as I'm sure you are aware.

and If my son (22yrs) didn't have us..i won't even go there!

Lets just help that there is help for those who need it ,
no matter what they have in the bank


and a kind word or two also.:-)
Message 2010 of 2,234
Latest reply