FIBROMYALGIA chat thread

[channys_mum]

For sufferers to be able to support each other. 

A place to chat/moan/whinge and know that someone understands

www.webmd.com/fibromyalgia/guide/what-is-fibromyalgia

[kilroy_is_here]

I almost wet my self laughing when the dr told me to explain to people it was like having the worst flue you have ever had 24 hrs day
If I could get back to that level I would do back flips down the street, my back muscle have spasmed that bad that my physio had to lay me on the ground and use he heal and all her body weight on the pressure points to get them to let go. The longest muscle spasm I have had lasted for 3 days my left leg went numb and had me dragging it be along when I walked

[kilroy_is_here]

Siggi I have seen the other ailments that have similar symptoms some are very scary , I hope you don't have any of them , I have sorted put my self on edge now whaling for other test results to rule out more serious problems

[channys_mum]

Kilroy I don't have the pain spasms anywhere near the extent you do.

I do know someone who comes close and she has been diagnosed with CRPS

Summary

Complex regional pain syndrome (CRPS) is a painful condition of a person’s arm, hand, leg or foot, which occurs after an injury, such as a fracture. Symptoms vary and may last months or years. A range of treatment is available. Most people recover, but some may have a relapse. CRPS used to be called reflex sympathetic dystrophy (RSD).

Complex regional pain syndrome (CRPS) is a painful condition of a person’s arm, hand, leg or foot, which occurs after an injury, such as a fracture. Rarely, CRPS can affect other body parts, such as the face.

Symptoms can range from mild to severe, and may last months or years. We do not know the cause of CRPS, but treatment aims to relieve symptoms and restore limb function (movement and activity). Most people recover fully, but the condition can recur and for a small group of people with CRPS, symptoms may be severe and persist for years. CRPS used to be known as reflex sympathetic dystrophy (RSD).

Females are three times more likely to be affected than males. In adults, the most commonly affected limb is the arm. In children, it is the leg. CRPS affects people in different ways and one person’s response to treatment will be different from another person’s.

Symptoms of complex regional pain syndrome (CRPS)
The symptoms of CRPS may include:

• burning pain in the arm, hand, leg or foot
• pain that changes in intensity, but often feels much worse than may be expected
• loss of fine motor control
• tremors or spasms
• stiffness
• changes to the skin, hair and nails on the affected limb
• the affected limb is warmer or colder than the unaffected limb
• the affected limb is sweatier or drier than the unaffected limb.

[siggie-reported-by-alarmists]

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@kilroy_is_here wrote:
Siggi I have seen the other ailments that have similar symptoms some are very scary , I hope you don't have any of them , I have sorted put my self on edge now whaling for other test results to rule out more serious problems

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  It's a difficult time for you..I can totally understand how you feel.... it has not been that long since I finally got my own diagnosis.

And yes, there is no cure for me, it's lots of pain relief and possible brain surgery.  Dealing with chronic pain is horrible, and I

hope you get your diagnosis soon.  Your neurologist is looking after you very well. I also take Lyrica among othe things, and

find it has improved things in different ways. For me, it helps with neurological pain. I had to start off on a very low dose, and

increase it over several months. Being an anti-convulsant, it takes a month or so to get the max effect. The best thing is

taking it at night, it will help you sleep and not have to lay there tormented by pain. Don't stress yourself out, this process is

necessary so the doctors can rule other things out, get a confirmed diagnosis, and get a treatment plan to adequately

reduce 

your pain and other symptoms. Listen to your body.

[kilroy_is_here]

Sorry channys mum
Reread it , it came across as a bit one upmanship , I will look into cprs but the symptoms don't Sound like me , but at this point to be honest I'm clutching at straws as my fingernails are getting to sore from hanging on

[kilroy_is_here]

Siggi have you had any side effects from lyrica? , I seam to be having a few

[siggie-reported-by-alarmists]

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@kilroy_is_here wrote:
Siggi have you had any side effects from lyrica? , I seam to be having a few

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 I only take it at night.... because of the drowsiness.. (prescribed by neurologist).... the first few mornings after I found I felt dopey 

which I 

really hated.....however after a few days it passed. I started on 25mg (extremely low dose), and have built up slowly

because of this.  The positives out way the negatives.

How about you, what dose are you on...... what side effects do you get?

[kilroy_is_here]

I'm on 25 at the moment going upto double that on Thursday then a week latter upto 150mg , taking twice a day
Suffering from dissy spells and a feeling of unease woke up last night feeling quite ill at ease worked for the pain well first couple of days but pain broke back through today which I was told to expect as the body adapts to it very quickly

[freddie*rooster]

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@kilroy_is_here wrote:
There you go is my in ability to spell panadole osteo , fibro fog ,my dyslexia or bloody spell check and they say to keep my stress levels down yah right

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Don't sweat the small stuff Kilroy if anyone objects to your spelling or punctuation tell them to bugga off.

[siggie-reported-by-alarmists]

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@kilroy_is_here wrote:
I'm on 25 at the moment going upto double that on Thursday then a week latter upto 150mg , taking twice a day
Suffering from dissy spells and a feeling of unease woke up last night feeling quite ill at ease worked for the pain well first couple of days but pain broke back through today which I was told to expect as the body adapts to it very quickly

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  Your going to up the dose very quickly.......dizziness is one of my symptoms, so I don't know any different.

  I have refused to take it in the morning, I want to be able to drive. My doctor said don't drive!.....I want to keep my

  independance.  It has taken me a year get up to 75mg....lol. I also take 2  x 400mg brufen (nsai) at night. Does the trick.

 I take panadol, brufen or panadeine during the day when need.........   It sounds like it's a good pain relief med for you, as long as the ill

at ease feeling goes away.

Keep a dairy of your symptoms and what your taking..... helps the doctors big time.