on 02-04-2009 01:05 PM
on 04-07-2012 11:44 PM
Hopefully the doctors would use some discretion and compassion whether there's a NFR order in place or not. Drs still have the choice not to resucitate on medical grounds - at least in Vic.
All the best.
on 05-07-2012 12:09 AM
I have no advice or wise words. This entire situation absolutely sucks.
Much love to you and your family.
on 05-07-2012 09:03 AM
Amy with a DNR your Dad can specify what the Doctors can and cannot do to prolong your Mum's life. I am so thankful that my late hubby did his own DNR, his greatest fear was being brought back to more pain....and, without it, the hospital is compelled to try and restart his heart.
Yeh, i know what a DNR is. I just dont know Dad's opinion on it or if he has one in place
on 05-07-2012 06:38 PM
on 05-07-2012 06:42 PM
Jen I didn't know this, the Palliative care folks told me he had to have one or would be resussitated.
I can understand that it is a difficult subject for your Dad, Amy.
on 05-07-2012 11:05 PM
Its getting worse.
My sister and I do not believe dad has mums best interests at heart.
My sister says Mum looks and sounds terrible and being in the hospital is horrible and miserable.
Dad talks like all is good and Mum is happy and fine.
I believe dad will get the hospital to do whatever it takes to keep mum alive...but not for Mum. For him. So his routine doesn't have to change.
I asked dad if Mum has a DNR and he said "No. When your Mum wants to go she will go herself"
I said "Do you really believe she has any control over that?"
He said "Yes, I know she has."
He's out of his freaken mind.
I told him my sister thinks Mum should go back to the home, to her room that she knows and her things"
Dad said "Its nothing to do with her. She has no say"
And there you have it. Exactly how he feels about us and our relationship with our Mum.
Im so sick of all of this.
So sick of the ups and downs.
You know, when i was told she was sick and close to dying, to me that was an up in my life.
Now, as it drags on each day, I am actually getting down.
Im getting down cause i dont want her to recover from this.
Im so sad and i cant get away from it
on 05-07-2012 11:28 PM
Amy I know your Dad is frustrating you and your sister, but, he does have the final say and if he is in denial there is nothing you can do. Don't beat yourself up, you can do no more than you are doing. Hopefully, as Jen says, if she continues to deteoriate they will just let her go and she will, at last, be in peace.
on 05-07-2012 11:37 PM
So sad for you Amy.
I just can't imagine what you're going through and yes, I fully understand your wish for your mum to slip away to find a release from her pain.
on 06-07-2012 11:18 AM
Amy, I can certainly understand you wanting your mother to "not recover"..
But, if it helps at all, try and focus on the fact that the ties that bind her to this life are very fragile, and that she is already about 95% "not here". I know that doesnt make it any easier for YOU to get through these days, because it isnt just your mum who needs to be out of this situation, its you and your family as well.
Have you noticed Amy, that the common theme running through what is said to you by your dad (and sometimes your sister) and what happens to other people (CJ for instance) going through a similar experience, is that it seems for those living nearby, that if you are not physically be there, then your opinion/feelings matters much less than theirs. Its as if physical proximity gives them the best knowledge about everything, everyone, outcomes etc and all rights, decisions, without consultation. So unfair but again, seems to be a recurring theme from those "on the spot" towards those doing it tough because they are not able to be there, but who care just as much.
Thinking of you and your family in these dark days. L
on 06-07-2012 07:52 PM
Prayers ((Amy)) :-x