on โ20-08-2013 07:04 PM
on โ21-08-2013 03:25 PM
@kengillard wrote:No I haven't spoken to him about it.....he knows he has visits to the "memory clinic".....read psychiatrist for diagnosis and follow up, but he's really going downhill quickly the last few days. His mother ended up in a nursing home with dementia too. He has diabetes which has caused his vascular dementia.
Thank you for all your suggestions...no. 1 is get another assessment from ACAT...that's a starting point. he's getting to the stage when he can't even get his own breakfast and lunch, which he was doing last week.
Thanks all again. It's also stressing out our daughter.....so I have to be strong for her too....it's good really...she's the only child here in Qld. and I think she feels it'll all fall onto her shoulders.
You do what you have to, I've learned.
yippee
He sounds like he's at a simliar stage to my dad. We're pretty sure his is vascular too which is why he's gone downhill so quickly.
on โ21-08-2013 04:29 PM
does he have diabetes? or heart disease?
on โ21-08-2013 04:43 PM
Diabetes, high blood pressure and previously a heavy smoker. All of the risk factors for vascular.
We were meant to start at the memory clinic last week, but I cancelled due to him being in care now. They were going to get back to me as to whether I should still do it or not, but havent heard from them. He has also changed shires which means he may need another referral.
The doctor I spoke to said in light of the fact he is deteriorating so quickly, do I really want to spend countless hours sitting in doctors surgerys, hospital waiting rooms or would the time be better spent just doing family things. Something to think about.
We've noticed that any kind of traumatic event triggers a decline, losing his brother quite suddenly to cancer last year was especially hard on him and at the same time we came close to losing my grandfather. Both of them were more like best friends to him than family, he saw his brother everyday and my grandfather lived with him. He's gone downhill considerably since then.
on โ21-08-2013 04:47 PM
sounds familiar. my OH was really good before he went into hospital and they changed his meds. he was in there for a week and kept saying he wanted to come home
on โ21-08-2013 04:48 PM
he sleeps most of the day now. don't think he can concentrate on tv easily. he gave up reading about 3 years ago.
on โ21-08-2013 04:50 PM
I've rung ACAT assesment team at Nambour...am waiting for them to ring back...not holding my breath tho.
on โ21-08-2013 04:55 PM
I rang last week to make an assessment for my grandfather, they sent me out paperwork that needs to be filled out and returned. He is not urgent though. I'd be hounding them until they put you at the top of the list.
they will need a health summary from his GP and a list of current medications, that might be something you can organise ahead of time so you are prepared. We rang dads doctor and had them printed up and then we collected them, we didnt need an appintment.
on โ21-08-2013 05:04 PM
@kengillard wrote:I've rung ACAT assesment team at Nambour...am waiting for them to ring back...not holding my breath tho.
Don't know where you live, but there is a Seasons retirement home in Caloundra, and one in Bribie, where both husband and wife can buy a unit, stay together, and the ill person can receive care, from low care to high care, including dementia care.
Seasons and Tall Trees, and ? Embracia are all these types of homes with the aim of not separating couples in their later years.
on โ21-08-2013 05:09 PM
punch - my Mum started on Exelon drug early after her diagnosis of Alzheimers to delay the effects of the disease (she wears a patch). It was said to be only effective for up to 2 years. She has been on it for 3-4 yrs now. She started on this drug in her own home and continues on with it now she is in a retirement home.
We think it has made a difference, she still knows who everyone is, aware of her surroundings etc. It is most effective if taken early after diagnosis.
on โ21-08-2013 05:14 PM
@kengillard wrote:he sleeps most of the day now. don't think he can concentrate on tv easily. he gave up reading about 3 years ago.
Would that be connected with his diabetes?