**AUTISM / ASPERGERS SUPPORT GROUP**

[doll*obsession]

A safe place for all members with friends or family with ASD

Come and have a cuppa, share your joys, and vent your problems with other people who understand.

[izabsmiling]

that's why I'm thinking the funding is limited to specific things - because not everything may be of benefit to the majority of users.

I think that's why they are changing things?

Here i was not talking about limited funding though but No funding available for new clients with Disability Services in the whole of Victoria.

[azureline**]

Iza :-x kind words mean so much.

[sheepy12]

you're incredible

[azureline**]

you're incredible

?:|

[catsnknots]

Iza, have you filled out a Disability Service Register Request?


http://www.dhs.vic.gov.au/search?cx=014431685225138346715%3Awh3tajwtoya&ie=UTF-8&cof=FORID%3A11&q=disability+support+request&sa=Search

[bella_again]

Would depend on exactly what services you are talking about. DHS do provide disability packages to eligible families however the waiting list is huge. Places like Yoralla also do, as do carer respite, however these are limited and do not necessarily provide specific funding rather respite funding. On top of that you can access funding as I do to find there is nothing available in your regional area to use the funding on.

I've given up. Can't be bothered with all the cr*p. As far as I am concerned we have done more for our kids by research applying methods that are right for them and even at times having to do our own therapy based on therapeutic practices appropriate to the kids needs.


There is still about 12,000 in dhs funding sitting in a direct payment account coming to nothing because its so ridiculous. They will take that back this financial year and no doubt reallocate it to other children. Until they come up with real packages that help real people its a waste of time.

[bella_again]

I just read that back and realised I sounded grumpy Sorry!!! I just mean that its really only useful for respite services that provide in home support or centre based support. If you need that go for it,it could just work!

I just found there guidelines were such in this region that you could not do anything with it.

[azureline**]

It is frustrating Bella, I feel for you. So far we have been unable to use any of the funding allocated....($12,000) most of what is being done with miss 4 is by her parents paying the entire cost or using medicare and paying the gap. That may change as her parents find services though.
She is currently seeing an OT and a dietician and it is going well. She is also booked to do sessions at Minds and Hearts clinic.

[izabsmiling]

Catmad,
I think that that is what we filled out in order to see if my son met the Critea (which they knew he did from the assessment.The eligability assessment is just a formality they said)

Sheeps,
I'm sorry it wasn't a personal attact.I'm more than a little sad and frustrated.
As parents we do naturally feel guilty and responsible for our kids ,in every way...After years of dealings with other people including professionals...that feeling of guilt can sadly be made heavier IYKWIM?

It's been years since I have expected help for my son,which would also help my other children and my whole family as well (like Bella said "she's given up".So had I after being told he doesn't fit in any one service) and being passed around like a hot potato.

This assessment for ABI was done to see if he did fit within their Target Group .I was told of all the wonderful services which could be available that could offer some help..
Then yesterday I was told there was No funding for New Clients to access these services.

I actually laughed!!!!!! though inside I wasn't laughing.

As a parent it is hard enough to have a child (regardless of age) who needs help.
It's harder still when you can't get them the help they need ,whatever the reason.

I know that I do all that I can
...I do still feel inadequate

[izabsmiling]

I just read that back and realised I sounded grumpy Sorry!!! I just mean that its really only useful for respite services that provide in home support or centre based support. If you need that go for it,it could just work!

I just found there guidelines were such in this region that you could not do anything with it.

Hi Bella,
As I have a friend with a DD who has funding that they can not use I said to the worker from Disability Services.
"it seems strange that there is no new funding coming in for new clients and also that many existing clients can not use the funding they have been given"

She said "I wish they'd send it back if they can't use it so that others can"


I didn't know what to say!