16th Feb 2008
Heres the lates news that my Mil who visited Mum yesterday has told me.
She says Mum seemed very alert and seems to try to get involved in the conversation.
Her skin was a bit oily but it is very hot at the moment in Dubbo and Mum has always been bad with the heat.
She moves her fingers a lot to answer questions and Dad has her nails nicely painted.
My Mil told her all about their latest visit here to see us and all about taking the kids to the pool. She gave Mum a kiss for me and the kids and asked Mum if she would like MIL to tell me that Mum loves me and Mum blinked 3 times for yes.
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22nd Feb 2008
Morning everyone,
I phoned Dad last night. I hadnt spoken to dad since Sunday night as i work Mon, Tues and Wed nights so i was hoping to get, i dunno, lots of news i suppose.
He said Mum had had good days and had laughed again at a movie. I asked him to do the laugh to me that she had done and he did. It was a kind of low chuckle and he said she was smiling when she did it.
He also thinks she can read. He tests her on words.
EG- he shows her the word "house" in the newspaper and says "poke your tongue out if this says house" and she does. He will also try to trick her by pointing to a word and saying its something else. She doesnt poke her tongue out then.
He also says she tries really hard to talke.
So i suggested maybe buying some sight cards. You know the easy word cards that you use on kids to teach them to read. I thought maybe he could use the 'yes' and 'no' cards to help her communicate. Like ask her a question and show the yes and no cards and she could use a signal like poke tongue out or blink towards the answer she wants to give. I thought that would show us that she understands us and can read. And eventually move on to harder cards. I know it would take time, but i thought it would be worth it and would also give dad something new to try.
Anyway, it didnt go down well with dad. He started to get very stressed and angry on the phone. Saying that she wouldnt be able to do it, he had other things he was working on with her, he was happy now with how they communicate, he didnt have time......lost of different excuses.
I told him i had read on the net about ways to try and encourage communication with patients like Mum and he snapped that none of those people on the net know Mum or how she is.
He said he does lots with her during the day. He does physio, he reads to her, they watch movies and go for a walk. He cant do another thing yet.
He says he is working on getting her to swallow as well.
I could tell he was getting very stressed so i changed the subject.
Not long after that the call ended and i sat and cried.
I was just trying to help
See, the thing about my dad is he's a very set in routines kinda man. All his life he has followed a routine. He has always knowns what to expect each day, what time things must be done by, where he needs to be and by when.
Mum wasnt quite as bad but would make sure Dads routine never changed too much.
My worry is that he has a routine again. He is doing the same thing everyday and i worry its not going to help mum improve. Like bringing a new 'thing to do' into his routine stresses him out and is to hard for him so he wont bother.
Thats what i worry about.
I hoped the sight cards would be an easy thing for him to slip into his routine......i was wrong.
Anyway, i had decided i will talk to my sister about it when she gets back from her holiday (shes away for 2 weeks. Still has a week to go till she gets back) when the phone rang. It was Dad.
He said he was sorry for the way he spoke to me. He said hes a bit stressed not having my sister around (he made me promise not to tell my sister as he doesnt want her coming home early). He was used to my sis going up to Mum after she finished work at 5pm and then he could head home and do his gardening, washing and housework. But while sis is away, he stays with Mum till 7pm and then gets stressed about all the jobs he has to do at home still. He said mum hasnt had many visitors (My Nan hasnt been to see Mum for a month ).
He said when my sis gets back he will try the card excercise with Mum.
We ended that call on a good note.
Dad has been offered help with his lawns and stuff, but he wont accept it. He wants to do it all himself like he used to