**AUTISM / ASPERGERS SUPPORT GROUP**

[doll*obsession]

A safe place for all members with friends or family with ASD

Come and have a cuppa, share your joys, and vent your problems with other people who understand.

[timeless_beauty_australia]

Hi Girls :-x
Joe had a bad morning, I was expecting to get a call from the school to come get him, but he has lasted the day, Tim is out picking him up now *happy dance*. We have to go up to the school on Thursday for an individual education plan meeting with the staff from the special education center, goes from 11:45-1:15, I am going to be so sore buy the end of it, but hopefuly it will be worth it. I also sent his permission slip today for an advisory visiting teacher to consult with school staff so fingers crossed things will be getting better for him soon, poor little man 😞

Hi Doll, how old is your Joe?...does he have AS...sorry haven't read the whole thread. Hope you are coping ok

[timeless_beauty_australia]

Bella, this happened to us as well. When big fella started his new school in grade 4 they told me point blank after telling him to his face that he was not autistic that he had a behaviour problem.

This was despite a folder three inches thick of all his therapies and tests etc documented and all his medical reports including one from Tony Attwood.

They couldn't equate his high functioning with an autistic child - he was their first, so they just went off what the text books said.

It took his breakdown and then his shrink in class with him to get through to them. Then in year 5, he got a brilliant teacher who had extensive experience with kids just like my boy and the tides began to change.

Their letter of apology still makes me smile just a little.
Oh wow Sheep, must have been so stressful for you and DS at the time 😞

I got a call from the pysc yesterday, she will speak to the school. In fact I think she has. I'm just letting it all ride for now there really is no point in becoming stressed out over it.

She is happier, still emotional but we are managing. There is so much going on atm that it just has to be one step at a time.

Good to hear Bella, glad your DD is a bit happier xx

[timeless_beauty_australia]

oh how things can change quickly. Mr. 9 has been going famously well on his meds and the anxiety has been very low for a couple of weeks now. Comes home last night after school and has a massive meltdown. Anxiety was sky high and sleep was very scarce last night. He has gone to school today very red eyed and anxious.

[bella_again]

Buying ((HUGS)) Poor Mr 9 I hope he copes through the school day. It is so hard watching them go through the anxiety and meltdowns 😞

I spoke too soon about DD, she got 6 out of 20 for a test and that was it 😞 She is very hard on herself, was quite emotional last night.

[azureline**]

Bella, I hope your DD feels better soon, it must be hard to watch.
I am gobsmacked, a letter today from the Mater, appointments set for June 7th with the OT, Speech pathologist and ? someone else....then July 26th..
I can't believe it was so fast.:O

[azureline**]

almost forgot.....ASOD......is what one of the appointments is for....anyone have a clue what this is?

[bella_again]

Hi Azure,
Thanks I'm sure DD will get through it if we survive that long lol I thought ASOD was to do with an eye disorder caused by a genetic anomaly.

Not autism are you sure they didn't mean ASD?

[bella_again]

Forgot to say good luck with the appointments, its fantastic you got in fairly quickly!. Ask if the speechie if they plan to test pragmatics.

[azureline**]

Bella, it is to do with the testing I thought, .....definitely not an eye disorder, may need to google it, lol. BBS
Pragmatics.....I will ask about that...and we are stoked to have it all in place so fast.

[azureline**]

Autism Diagnostic Observation Schedule (ADOS)

For assessing and diagnosing autism and pervasive developmental disorder across ages, developmental levels, and language skills

That makes sense, they did not explain in the letter.