on 02-04-2009 03:29 PM
on 26-06-2012 05:34 PM
Cat, I think I am on the spectrum, I know my eldest daughter is, however, I had never heard of aspergers until 4 years ago. I have been told to get assessed but I can't see any point to it, for me.
Now, a lot of people say they can see why my grandchild has it.......
I also believe my mother had it.
My most serious issue is social ....and anxiety is a big problem for me. I have had panic attacks all my life and only now do I understand why.
on 26-06-2012 06:54 PM
Where it comes from is not always apparent and may not come directly from you or his father.
A lot of experts will tell you that there is a little bit of Asperger's in everyone. Some have enough to be diagnosed, many don't.
on 27-06-2012 07:22 AM
and girls are better at masking their symptoms.
Kiwi, I keep forgetting we have met but I do remember your lovely boys quite clearly! :-x
I think the active 3 yo I had with me was distracting!
on 27-06-2012 08:27 AM
Explaining the Touch Avoidance/Seeking Paradox!
https://www.facebook.com/autismdiscussionpage/posts/339198772826296
on 27-06-2012 08:46 AM
and girls are better at masking their symptoms.
Kiwi, I keep forgetting we have met but I do remember your lovely boys quite clearly! :-x
I think the active 3 yo I had with me was distracting!
Thank you for saying my boys are lovely. :-x
Given the older one has been asked to leave the high school, it's a confidence booster I need.
3 yr olds are fun to go out with and are always distracting :^O
on 27-06-2012 01:27 PM
I also suffer from panic attacks, but I've learned to cope with them better.
How interesting the experts say there is a little Aspergers in all of us!
on 27-06-2012 01:31 PM
I think it depends on the amount and the extent of it Cat, as to the diagnosis, as all the symptoms are normal things, almost like a personality trait maybe but those with it are extreme in many areas.
Yes, that is how we cope day to day, for us, it is about planning, preparation and understanding.
You are welcome Kiwi, I meant it.:-x
on 07-07-2012 01:19 PM
https://www.facebook.com/autismdiscussionpage
Autism “explains” behavior, but does not “excuse” behavior!
Many of the past posts have focused on understanding, accepting, and validating the child, before attempting to change their behavior. One of the basic premises of this page is “assume the children is doing the best that they can, given the situation they are in, and their current skills to deal with the demands.” Consequently, when the child is struggling, we need to lower the demands to better match their skill level, and/or provide greater assistance to support their performance. Hence, when things go wrong, we often have placed the child in situations for which they cannot handle. We need to take responsibility for overwhelming them.
Now, in this premise, where does the responsibility lie with the child? Autism presents many challenges (sensory issues, information processing, emotional dysregulation, social relating issues, etc.) that overwhelms the child, and explains “why” they may melt down and act out. However, autism must not “excuse” the behavior. Of course, when the child is overwhelmed and disorganized, we need to recognize, understand, and validate how he is “feeling”, but not necessarily accept how he is “behaving.” All children need boundaries, rules, and expectations. We must communicate understanding when upset, but not accept physically attacking others, destroying property, and serious self injury. Autism is not an ‘excuse” for aggression. The child needs to learn that there are a variety of ways that they can express frustration (even screaming, hitting a pillow, etc.), but attacking others or breaking property are not acceptable.
We as the supportive adults need to ask “how do I want the child to express frustration?” Working with the child, identify a couple of ways (coping skills) for the child to appropriately express their anger and frustration (using their words, physical exercise, ask for help, engage in regulating patterns- rocking, jumping, etc.). From there we need to help the child practice these alternatives so they can adequately express their anger. However, we also must establish strong expectations of no aggression, and have appropriate consequences, including making amends, for aggression. Boundaries and expectations need to be very clear, with consistent consequences, so they are concrete and easy to understand. The child needs strong, black and white rules and expectations to make sense of the world, and understand what is acceptable and what is not allowed. Just like we need to understand and respect them, they also need to learn to respect others.
Strong boundaries, with clear expectations, and consistent consequences, implemented in a posture of understanding, acceptance, and validation allows us to respect the child, while changing their behavior. By focusing on teaching, practicing, and heavily reinforcing the positive alternative behavior, natural consequences for unacceptable acting out can be effective. However, before dealing with the behavior, acknowledge and validate the “feelings” underlying the behavior. Implement the consequence without degrading the child, so he views the consequence as the result of his behavior. Make sure the child knows and practices how to react appropriately, and always review what the consequence is before using it. This way, when you implement the consequence, it is understandable and predictable. Every child needs strong boundaries and consequences for his actions. Don’t let the diagnosis excuse the behavior. At the same time, when the outbursts occur, we more than likely placed the child in a situation that they could not handle. We still have the responsibility to re-evaluate the demands, and provide greater assistance and support to decrease the likelihood of the situation occurring again. By doing so, we decrease the frequency of these unacceptable behavior by better matching the demands to the child’s abilities, and teaching the child acceptable ways of dealing with anger and frustration.
on 08-07-2012 04:04 PM
It's encouraging to read we're not the only ones that believe in a genetic link.
I posted here for info AGGGGGES ago, since then went down the path of a formal diagnosis, but issues with finances and distance and being generally overwhelmed didn't get a 'formal' diagnosis of Aspergers for my now 7yo son. BUT it has been a great help having 'a name' of the condition as its allowed me to research to find info and apply strategies/techniques that work FOR HIM. I have been researching any challenges we have with him and finding solutions, then using what works and keeping his teacher updated with what works so she can then adjust and apply that in the classroom/school environment in conjunction with the policies they have in place. Also any materials needed, books or computer programs or teaching aides she lets me know and I source them myself.
When I started looking into ways to help my son and it was suggested that he may have aspergers, and through researching that and looking for specialists to diagnose etc it was pretty much done on my own as every time I mentioned it to my OH the most common reply I got was "There's nothing wrong with him, he's just particular like me, he just likes things done a certain way, he's just slow to click onto info (re; school)"
Now, (and in particular after OH read a cover letter and info pack I put together for R's teacher) it is amazing, he has 'clicked' with R and more so himself. When we are talking he'll say things like "oh, that's why I didn't 'get' maths until I moved school and the nuns were teaching times tables by repetition" or I'll be having a bad day and have little patience left and get frustrated with R and OH will take over and get 7yo to do (whatever it is) how he'd like like it done/to taste/shoes tied/whatever and OH will say "I don't like XXXX, so I understand why R doesn't, here R, try this"
Also while OH and I are talking about cousins/nephews/his dad quite often I he'll stop and say "Ah, that's why XXX didn't fit in, he's so much like me" or "That's why S & I click, we are so alike" or "wow, I'm so much like my old man, everyone used to say so, we we're the best of mates, but he was a grumpy old bastard who didn't suffer fools, now I understand why"
on 08-07-2012 05:38 PM
Hi, excellent result you have! I think we would all like to think there is a magic answer with a diagnosis but the fact is, there isn't one. Well done to you:-x