Update Pics

[tania720_0]

Still here just thought some of you would like to see a few pics of the chubba bubba LOL

[id-to-post-anything]

very brave boy!

thanks for the piccies

[tania720_0]

had 5hrs sleep darn machine alarms...bring on the coffee!!!!!!

Second dialysis machine has been tested and is working well...hubby had to take it out the container as too heavy for me to do it

have to pack our gear today as we have to leave tomorrow morning by 9am so we get to the hospital and have blood test before the lab closes.

[Anonymous]

He is so cute Tan. You are doing some miles at the moment, just as well you have the Prado,LOL

[tania720_0]

shhhhhhhhh don't say the P word it upsets someone....]:)
And yes clocking up the km's again but hopefully we can do blood test and check ups back with the pead 100km away...so will cut back on kms again 🙂

[Anonymous]

hehe that's why I said it Tan, LOL

[tania720_0]

ok up nice n early for dr appt.......blood test has potassium low again so we are adding nan formula to kindergen instead of using nutrini as that sends the potassium too high.....have to come back again next week 😐 see if blood test is different...hopefully then we can go the 2 weekly visits or even 1-2 monthly 🙂

[tania720_0]

Have parent interviews tomorrow afternoon until 330pm until 6pm could be interesting.

Ashton is his normal self..has taken a liking to twister but it is hard for him to do more than 2 plays LOL so funny to watch...

he is doing well on the dialysis machine although the alarms are giving me n hubby the sits!!!! had 18 alarms sat night and last night was 8....the renal nurses say alarms are normal some nights not many other nights because Ashton has a urine output it upsets things aswell...ho hum ho hum repositioning him all the time helps but it makes him cranky..

[tania720_0]

1 alarm last night 2 at 7am on the last outflow...yay 🙂 must get organised and order more stuff for the machine.....
because we use 2 @ 5lt bags a night and a bset and drain bags they r what needs ordering the most..

[tania720_0]

it is pretty grr when I have to ring up and ask for appt time for chubba and they say oh but you don't have one.....GRRRRR have one 10am friday....:) better get packing again!!!!!

Had 8 alarms last night...hmm

[tania720_0]

back to the city again this morning..Ashton has to have bloods done so going straight to the hospital then back to hospital friday morning for Dr appt